A workshop with key stakeholders, including Consumer Engagement Panels, to reflect progress, share learnings and consider future priorities. According to the Australian Institute of Health and Welfare, substantial disparities still remain in terms of health outcomes between First Nations and non-Indigenous Australians. Clinical trials are the means by which medical treatments progress - improving patient outcomes and saving lives. Therefore inclusivity and access to clinical research for all people is an essential component of levelling up healthcare provision to close the health gap. In recent years, diversity, equity and inclusion has been a hot topic with many organisations globally issuing guidance, and in some cases guidelines progressing to become regulatory requirements.
In Australia “Partnering with Consumers” is a core component of The National Clinical Trials Governance Framework (reflecting NSQHS standards). Additionally “The Consumer Involvement and Engagement Toolkit” (a joint initiative between the Australian Clinical Trials Alliance (ACTA) and Clinical Trials: Impact & Quality (CT:IQ) serves as a consolidated resource to support consumer involvement in research, provided via an interactive map. It’s important for researchers to consider inclusivity and access broadly, in “Contemporary Clinical Trials Communications” Woollett et al cite that most trial participants either reside in, or are treated in metropolitan areas. A capability framework is provided to support inclusion and access for participants in outer metropolitan and rural areas.
The purpose of this workshop is to provide a forum for key stakeholders/stakeholder representatives to reflect on the progress that has already been made in regard to diversity, equity and inclusion. The workshop provides an opportunity to share ideas, discuss best practices, and consider priorities for ongoing improvement.
Objectives for this workshop are to: -
• Identify completed and ongoing work in relation to patient diversity and inclusion
• Explore what stakeholders (including Consumer Engagement Panels) find most useful and also what additional resources and insights are needed
• Enable opportunities for further dialogue and collaborative working between workshop participants and broader stakeholder groups
• Discuss the potential to share the work more broadly in terms of being a global benchmark; and to attract more clinical research opportunities to patients

A workshop with key stakeholders, including Consumer Engagement Panels, to reflect progress, share learnings and consider future priorities. According to the Australian Institute of Health and Welfare, substantial disparities still remain in terms of health outcomes between First Nations and non-Indigenous Australians. Clinical trials are the means by which medical treatments progress - improving patient outcomes and saving lives. Therefore inclusivity and access to clinical research for all people is an essential component of levelling up healthcare provision to close the health gap. In recent years, diversity, equity and inclusion has been a hot topic with many organisations globally issuing guidance, and in some cases guidelines progressing to become regulatory requirements.
In Australia “Partnering with Consumers” is a core component of The National Clinical Trials Governance Framework (reflecting NSQHS standards). Additionally “The Consumer Involvement and Engagement Toolkit” (a joint initiative between the Australian Clinical Trials Alliance (ACTA) and Clinical Trials: Impact & Quality (CT:IQ) serves as a consolidated resource to support consumer involvement in research, provided via an interactive map. It’s important for researchers to consider inclusivity and access broadly, in “Contemporary Clinical Trials Communications” Woollett et al cite that most trial participants either reside in, or are treated in metropolitan areas. A capability framework is provided to support inclusion and access for participants in outer metropolitan and rural areas.
The purpose of this workshop is to provide a forum for key stakeholders/stakeholder representatives to reflect on the progress that has already been made in regard to diversity, equity and inclusion. The workshop provides an opportunity to share ideas, discuss best practices, and consider priorities for ongoing improvement.
Objectives for this workshop are to: -
• Identify completed and ongoing work in relation to patient diversity and inclusion
• Explore what stakeholders (including Consumer Engagement Panels) find most useful and also what additional resources and insights are needed
• Enable opportunities for further dialogue and collaborative working between workshop participants and broader stakeholder groups
• Discuss the potential to share the work more broadly in terms of being a global benchmark; and to attract more clinical research opportunities to patients